Wednesday 27 May 2020

My sister’s learning disability and mental illness are not ‘a blessing’

Just what I used to hear from conversations with young siblings of children with disabilities / life limiting illnesses ... the frustration, anger and guilt. 
They deserved and needed particular understanding and to have the space and time to share their feelings. 

"The saddest thing is that she’s aware that she’s different. She knows I have a job, a boyfriend, a car (mainly to be able to drive her around — but that’s no consolation to her), and she doesn’t understand why she can’t have all those things too. We all compare ourselves to the success of our siblings, so imagine having such a large contrast in the opportunities that are presented to you. I have extreme survivor’s guilt — I feel like, by pure chance, I got to be the one who got to have a normal life. And I’ve said out loud a few times that if I could swap places with her, I would. My mum tells me thinking that way doesn’t help anyone — least of all my sister — but we don’t always experience constructive thoughts, do we? And I suppose this gives me a sort of control over my thoughts, and reduces the survivor’s guilt a little bit — knowing I’d be ready to step in at any time."

Link 

No comments:

Post a Comment